When a boy in a family is diagnosed with Duchenne MD, not only he but also the whole family members are affected and suffered side by side. It continues steady and no one knows where will it stop ................

Parents are in the most grief, sadness and anger situation. First, They run after the diagnosis of the illness and later escape after the search of treatment. They cry and try but every effort goes down without a cure. For it, They may have to loose and  sell  their assets and  wealth  for  the diagnosis and trail of treatment. Now, They pray to Almighty God for an end to their sufferings. Later, even blames to God as " What is my fault? " " Why did you not do justice? " " What is this, Why for me? " " What to do? " But they also as others fear from God and now starts asking themselves as " who will help me? " " Who will guide me? " " Who will support my son? " etc. 

Although it will take several years or more to conquer over this situation, becoming as negative side of the problems. Still, there is a positive (hope) side with more and more capable and dedicated researchers in laboratories all over the world working on cure. It is certain that an effective therapy will develop, sooner or later. Let us hope for the best!

Therefore, the most important things to remember in this situation is to make a plan and develop strong support system (care package)/strategies by the family members, friends, helping organization, and other parents of child in a global and collaborative platform.

For this reason, research and cure is the vital part of this aim, that is possible only with the funds and it is based  on awareness.

  Therefore, there is a need to raise voice on Duchenne Muscular Dystrophy (DMD), so that there would be a network & united support group to fight against this deadly disease, get triumph over the difficulties & do one of the best works in our sensational human life.         

  Parent Project Muscular Dystrophy is the plateform eastblised by some of the parents of the vicitims of DMD, registered in His Majesty's Government of Nepal and affiliated with Social Welfare Council in Nepal for this global mission .