PPMD Home
Muscular Dystrophy
About DMD
Diagnosis Method
Progression & Symptoms
Approaches on DMD
Research & Diagnosis
Global Mission
Pregnancy Test
Reference
PPMD in Nepal
Program & Proposal
An ally organization of
DMD in Nepal
Preface
  The Himalayan Kingdom of Nepal is a unique natural and cultural destination in the South Asian Map of the World. It is one of the least developed countries having the average ratio of 1 Doctor for 10,000 patients for health care within 24-million population in total.

The available data on the number of DMD patients shows the same proportion 1: 3500 in Nepal. However, the secondary survey, data collection and diagnostic research are still to be done more for the factual report of the disease and patients in Nepal.
PPMD is proud to take the credibility for these actions in Nepal :
  PPMD, Parent project in Nepal is a pioneer organisation in Nepal established in 2002 by the common effort of some of the DMD/BMD parents (relatives) of the patients, with following objectives.
  • To establish a central platform for the exchange of information and awareness about the disease among the patients and their relatives or family members.
  • To establish physiotherapy and rehabilitation center (first of its kind in Nepal) to provide primary health care facilities (ex. physiotherapy, medicines and support equipment's)
  • To raise necessary fund to meet its above expenses by donation, membership and various activities in local, national and international level In and Out of Nepal.
  • Act as a link point between the volunteers and the center to provide their allocation to render the service to the patients in different parts in Nepal.
   
Project programs and activities
  With the help of our supporters, our research continues to make advances and offers hope to thousands. We can also sustain our services that include expert medical care, the best up-to-date information and practical advice.
Planning : Planning and finalizing on different programs/activities for Research, Treatment and Hope in relation to DMD.

Research : Help in our search for a care/viable treatment for Duchenne Muscular Dystrophy globally.

Action : Activate the role of Parent Project for treatment and further action.

Awareness : Public awareness programs are conducted regularly in association with the supporting agencies and volunteers.
It helps to:
  • Update and display of the information about DMD.
  • Victims of DMD and their families are informed about the prevention measures and right behavior with DMD patients.
  • Insist to raise all types of support for the victims of DMD.
  • A forum of discussions to help limit the effects of muscular dystrophy.
  • Exchange of information among professionals, patients, patient's parent and general well wisher.
  • For disability law and legal aspect.
  • Promote advocacy on DMD.
 Fund raising: How important is your valuable support!
  Your small or big financial or physical support will count bigger for us. Our appeal to all is to come forward with whatever supports you can provide. Your every financial (donations and sponsoring regular programs) technical and mankind support makes a different in the lives of the children with muscular dystrophy in Nepal.
 PPMD doings
 
  • To establish a physiotherapy and rehabilitation center to provide medical counseling and referral services to patients in Nepal.
  • To establish a well- equipped research center for the future prevention of the disease in Nepal.
  • To provide physical equipment and support to the patients who are unable to get it due to financial lacking.
  • To systematize fund raising/ monthly collection campaign.
   
 Relevant contact addresses for diagnosis, health counseling & Services in Nepal
  Professionals:
  Neurologist
  Prof. Dr. J.P. Agrawal
Consultant Neuro-physician
Tribhuvan University Teaching Hospital, Maharajgunj, Kathmandu, Nepal.
Tel: 977 1 412303, 412404
E-mail : jpagrawal@healthnet.org.np
   
  Orthopedician
 

Dr. Rohit Pokharel
Orthopedic Surgeon(Lecturer)
Tribhuvan University Teaching Hospital, Maharajgunj, Kathmandu, Nepal.
Tel : 977 1 412303, 412404
E-mail : rohit@healthnet.org.np
  Medica Stores (for Steroids: Deflazacort)
 

Moon Pharmaceutical Pvt. Ltd.

Riddhi, Siddhi Shopping Center, Thamel, Kathmandu
Pako, Newroad, Kathmandu
Tel : 977 1 242673, 246640
Fax : 977 1 225401
E-mail : aii@wlink.cm.np
   
  Orthopedic devices (for Night splint, AFO, KAFO, Shoes, Belt....)
  Orthopedica
Kopundole, lalitpur, Nepal (Backside of Kumaristhan Kupandole)
Phone N.977-1- 5523749 , Fax N. 977-1-5536022
Email: orthopedica@wlink.com.np
   
  Nepal Rastria Marwari Parisad
 

Kritim Anga Karyasala
Chauni, Tahachal Kathmandu,Nepal.
Phone N. 977-1-4427088, 4272361